A KEYNSHAM father who has a neuro-degenerative disease braved sweltering summer temperatures to complete the Cotswold Classic Half Ironman.
Paul Newell was joined by his sons Eben, aged 10, and Josiah, seven, as he crossed the finish line in six hours 26 minutes.
The 44-year-old battled through the triathlon event in 30C temperatures to raise funds for cmt.org.uk – a charity that champions research and support for those with Charcot-Marie-Tooth disease.
Paul said: “The heat was brutal, and for the first time in 14 years, the event’s swim leg was designated non-wetsuit due to soaring water temperatures – an added test for all of us taking part.
“Despite the gruelling conditions, the experience was unforgettable. The camaraderie among fellow competitors and the encouragement from spectators along the course made every moment, however tough, feel worthwhile.
“There were times during the run when the heat felt almost unbearable, but I kept going, motivated by two powerful forces: the knowledge that I had already raised over £3,000 for a cause close to my heart, and the sight of my wife and sons cheering me on from the sidelines.
“Crossing the finish line with my two boys beside me was a moment I’ll treasure forever. I hope it showed them that, even with a diagnosis of Charcot-Marie-Tooth disease (CMT), extraordinary things are still within reach.
“That finish wasn’t just about completing a race, it was about making a statement, and hopefully raising a little more awareness of CMT in the process.
“So far, I’ve raised £3,300, but more than that, I feel I’ve taken an important step in supporting a cause I deeply believe in. This event has left me energised, inspired, and even more determined to keep going – tackling more challenges and continuing to raise both funds and awareness for CMT.
“To everyone who has supported me – thank you. Your belief carried me through the toughest moments.”
Before being diagnosed with the disease, Paul suffered years of symptoms such as constant pins and needles in the arms and hands, numbness in the feet, and hearing loss. After going to see his GP, several specialists and having conversations with his family, he was eventually diagnosed with the hereditary condition in May 2023.
The condition is in the same neuropathic grouping as Motor Neurone Disease. Although not life-threatening, it is progressive and has no cure.
Despite this, Paul leads an active lifestyle, being a Beaver Leader for Rocky Colony, 1st Keynsham Scouts, as well as a youth sports coach for Keynsham Rugby Club and Keynsham Cricket Club.
You can still donate to his Ironman fundraiser at https://tinyurl.com/mr2bk2be
Keynsham dad’s moment to treasure forever
